If you have read My Story-Health, then you know I have been through the wringer with health issues. I am always looking for ways to improve the health of my family and myself. I have learned that sometimes, unconventional is better. My biggest lesson in thinking this way came from being diagnosed with celiac disease and having my diet as my prescription to better health. I learned how little doctors have known about this disease. (Which is one reason it took me 18ish years to be diagnosed.) I have learned that doctors know much less than we think they do. This was compounded when my daughter was diagnosed with Hashimoto’s disease and discovering how unhappy with healthcare, thyroid patients are. Here, I will post things I have learned and continue to learn, frustrations, and hopefully my experiences will help you with your experiences. Also, check out my Gluten Free recipes. These are recipes that I use and our family likes; some I have created myself from learning to cook gf, altering other recipes, or just family favorites.
I not only look for a good gluten free sunscreen but it also needs to be hormone disruptor free! Many people with celiac develop thyroid disease as well and so hormone disruptors are a big concern.
Are you alone in your gluten free journey? Are you unsupported by your family, friends, co-workers, doctor, and/or those closest to you? It is never easy to change your diet.…
Every year we update our gluten free and hormone disruptor free sunscreens. Companies sometimes change formulas and you want to be sure to use the best sunscreen for you and…
So, here we all are, taking precautions by quarantining at home, due to the corona virus (COVID-19). Many people have been sent to work from home. Kids are home from…
Having been gluten free for more than 15 years, now, I am so happy there is more labeling than there has been previously. However, it isn’t perfect. There are laws…
This recipe is a little involved, but it is so worth it! I needed a lot of cream puffs. First, because my daughter really wanted some cream puffs and second,…
The last day of our whirlwind trip to Oregon was at Gearhart Beach, Seaside and then we spent the evening back on Indian Beach, in Ecola Park. Gearhart Beach AKA…
Before leaving on our quick trip to the coast, I discovered I had an abscessed tooth! Yikes! The dentist talked about doing a root canal, before my trip, like the…
On our whirlwind trip to the northern Oregon coast, we booked our hotel in Astoria. We made this our homebase. There’s quite a bit to do in Astoria, but we…
Eggs are naturally gluten free and make a great breakfast, especially if you are eating gluten free or paleo. However, they can get boring after a while! Here’s a delicious combination we enjoy for breakfast!
My kids, however, rarely like eggs for breakfast but when I mentioned I was putting goat cheese on them, they were all in. I know it is a little weird but all of my kids really love goat cheese!
The Delicious Directions
Any recipe is easier if prep work is done before starting the stove. So, cut up your turkey (2-3 slices) and red onion, if you are using a fresh one. (You don’t need a lot of onion. If I were cutting a fresh onion I would do one or two slices from the onion and then chop into smaller pieces.)
I, however, am using these freeze dried ingredients that I found at Costco by Litehouse. They are so good especially when I am not feeling like doing a lot of prep work! They can also be found on Amazon!
This post contains affiliate links. I include these links for your convenience to be able to find similar items to what I am using. I earn a small commission for the referral, but your price remains the same.
For 2 people we do 7 eggs- scrambled. I can crack 5 out of 7 eggs without breaking the yolk. However, scrambled means no whole yolks remaining and so scramble them good and then we are ready to begin.
Melt butter in a fry pan. You could use oil and coconut oil would probably taste really good with these ingredients!
Add scrambled eggs. Put chopped up turkey, approx. 1 Tablespoon (or your preference) of red onion, sprinkle in some basil, salt and pepper to taste.
It looks similar to how I make my omelets, but that’s not what we are making so don’t let it just cook there. Push the egg and all it’s ingredients around in the pan with a spatula.
Now it is time to crumble some goat cheese across the top of your cooked scrambled eggs.
Because my husband likes tomatoes I cut this cute heart shaped tomato and put on the side of his plate. I don’t know why my tomato plant has produced 3 heart shaped tomatoes this season but they are so cute!
Nice way to switch up scrambled eggs!!!
This post contains affiliate links. I include these links for your convenience to be able to find similar items to what I am using. I earn a small commission for the referral, but your price remains the same.
Delicious Turkey, Red Onion and Goat Cheese Scrambled Eggs For Two
Shannon LeMmon
A little more than scrambled eggs to bring a delight to your breakfast table in a light and delicious way! This recipe is for 2 people. When I do it for one I use 3 eggs and one slice of Deli Turkey.
Non-Alcoholic Fatty Liver Disease may be one reason why you still feel run down, tired and fatigued even though you are being strict with your gluten free diet. Compared to the general population, those with celiac tend to have a higher risk for non-alcoholic fatty liver disease, according to a recent study.
*CeD = celiac disease and NAFLD=Non-Alcoholic Fatty Liver Disease
“A recent study has revealed that CeD patients have a higher association with NAFLD than the general public. This scientific finding was confirmed by experts at the Celiac Disease Center and Department of Pediatrics at Columbia University, as well as at the Department of Medicine and Epidemiology/Biostatistics of Stockholm, Sweden, and the Department of Pediatrics in Örebro University Hospital.” https://celiac.org/blog/2015/07/celiac-disease-and-non-alcoholic-fatty-liver-disease/#xpwOiEVcpde5Lskg.99
I’m going to assume that you already know that Celiac Disease is an auto-immune disease and how it works. But, just in case you need a refresher or don’t know much about celiac, check out more about Celiac Disease here: https://www.gluten.org/resources/getting-started/celiac-disease-2/
***I am not a doctor, don’t take this as medical advice. Always do your own research and consult a medical professional with any concerns you have. I hope to give you a place to start looking and something to consider.
About the liver
So, how much do you know about your liver? It really is an amazing organ! The liver has the ability to repair or regenerate itself! It is the only organ that can do this!
Did you know your liver is considered your largest gland?! More accurately, it is a glandular organ. The reason it is considered a gland is because it produces bile.
The function of bile
Bile is needed in order to properly digest fats and aids in digestion. Sounds like an enzyme, because it breaks down many things to be used or better absorbed. However, bile is not an enzyme. Still, it does help aid enzymes secreted by the pancreas. Bile plays an important part in breaking down fat to absorbable pieces for the small intestine.
How your liver works with your pancreas
So, how do the liver and pancreas work together? When the body’s glucose (sugar) levels drop below normal the liver goes to work and converts the stored sugar into a form of sugar the body can use. It’s as if the liver says, “Hey, pancreas! You look a little low; here’s a little sugar to pull you through.”
I can’t help but wonder if the liver not functioning properly is one of the reasons that many people with celiac also develop diabetes? Of course, the liver wouldn’t be the only reason this could happen.
*Did you know that damaged villi in the intestines can keep enzymes from being able to break down sugar? (The villi aid in digestion and each part helps different kinds of foods to be broken down: top part is dairy, middle is sugar and the bottom is fats. So, the more damage the less enzymes your body is able to produce to help break down these foods.)
Back to the liver
If your liver isn’t working properly then it can’t do it’s job effectively. Celiac disease isn’t just a gut disease (small/large intestine and stomach), it can effect multiple systems of the body. In fact, it can affect every part of your body, in some way!
I bet you think that the kidneys are the only organs responsible for urine. The liver does it’s own filtering, cleaning toxins and harmful substances from the body. Until I did this research, I thought the kidneys did most, if not all, the work! Your liver breaks down protein and changes it into a substance called urea, which then goes on to the kidneys and that waste is removed from the body with the urine. ( http://www.webmd.com/a-to-z-guides/blood-urea-nitrogen#1)
One of the jobs of the liver is to work as storage.
The liver stores fats, vitamins, iron and sugar. (*Many people with celiac disease have suffered with anemia before and sometimes even after their celiac diagnosis.)
To re-cap the liver’s responsibilities:
Clean toxins and other harmful substances from the body (drugs, alcohol, chemicals)
Detoxing the body (making urea)
Chemical conversion (changing sugar to be used by the pancreas, breaking down hemoglobin, insulin and other hormones)
Energy storage (Fats, iron and other vitamins)
Fatty Liver Disease VS Non-Alcoholic Fatty Liver Disease (aka NAFLD)
Don’t get confused. Non-Alcoholic Fatty Liver Disease doesn’t have to do as much with your weight as it does with the fat being hoarded by the liver which can enlarge it.
The difference is about like it sounds. Non-Alcoholic Fatty Liver Disease happens to people who don’t drink large amounts (if any) of alcohol. While Fatty Liver Disease is one of the consequences of alcoholism. Symptoms get worse after heavy alcohol consumption.
Fatigue, tired
Loss of weight or appetite
Weakness
Nausea
Confusion, poor judgement, or trouble concentrating
In NAFLD, the liver actually gets fat- the fat in the liver cells is excessive. Remember, it is normal and healthy for the liver to store fats. It’s part of its job. However, the fat accumulation in NAFLD is on a hoarding scale. How much fat does it take to be in this category? Only 5%-10% of the liver’s total weight, being fat. The glandular organ increases in size and sometimes patients will feel pain just under their lower right rib. ( https://celiac.org/blog/2015/07/celiac-disease-and-non-alcoholic-fatty-liver-disease/)
*Anyone who has abnormal liver levels should be checked for celiac disease. (If not, already diagnosed.) Most liver levels will normalize once they are following a strict gluten free diet. The average person, in the study, had levels normalize after 1.5 years being strictly gluten free. Unfortunately, it isn’t necessarily the case for all celiac patients and scientist aren’t sure why.
Who’s at risk?
While those with celiac seem to be at a higher risk, 3X higher, it is yet unknown why this is the case. More risks as to why some people develop NAFLD are:
gluten consumption before diagnosis of celiac
abnormal intestinal absorption
genetic factors
overgrowth of bacteria in the small intestines
middle-aged
viral hepatitis
fast weight loss
obesity
malnutrition
some medications can cause damage (including acetaminophen)
diabetes
For people with celiac disease the risk is greatest during the first year, after the diagnosis of celiac. This risk continues to be high for as long as 15 years after the diagnosis of celiac disease. https://www.verywell.com/celiac-disease-and-liver-diseases-562618
*Keep in mind that while it is called “fatty” liver disease it is not referring to your physical shape but rather what is happening to your liver!
Symptoms
Most people don’t have symptoms.
When symptoms are present, a person may experience some of the following:
feeling tired
loss of weight and appetite
weakness
nausea
confusion
poor judgement
trouble concentrating
enlarged liver
pain in the center or upper right side of your body under the bottom rib
discolored patches of skin on neck, face or under arms
Testing for NAFLD
NAFLD can be confirmed through a biopsy. A blood panel that measures ALT is also a good indicator according to Dr. Alan Christiansen. In his post he lists 10 ways to manage NAFLD.
If you are overweight- exercise, lose weight. Be careful and do weight loss in a wise manner and not too quickly. The recommendation is to not lose more than 1 or 2 pounds a week.
NAFLD becomes serious when the disease progresses and there is inflammation and damage to the organ. Not everyone, with elevated liver levels, improves on a gluten free diet. Some will have chronic liver inflammation that can lead to fibrosis or cirrhosis and these conditions are not reversible.
Following a gluten free diet is imperative in order to manage celiac disease but has other benefits as well; including reducing the risk of other diseases and complications like we have discussed with NAFLD.
***I am not a doctor, don’t take this as medical advice. Always do your own research and consult a medical professional with any concerns you have. I hope to give you a place to start looking and something to consider.
Not me, this time. My husband just had a colonoscopy to see if they could figure out what has been going on with him. This has been a long time in coming. We have known that there is more going on with him. He did have testing years ago after I was diagnosed with celiac to see if he also had celiac. His symptoms have always been more classic as far as celiac goes. However, everything came back negative. Eventually, this led us to doing a gene test. It came back that he doesn’t have either of the 2 celiac genes: HLA-DQ2 or HLA-DQ8.
So, we know he doesn’t have celiac and he has been diagnosed for more than 10 years with non-celiac gluten intolerance because he 100% was reacting to gluten. He did a gluten challenge and it was so hard on him! Many of his symptoms improved but over time some things have gotten worse and we have been searching for what else is going on with him. His body has been reacting to more than just gluten. There is definitely something more!
More Testing
It is hard to get most men to take care of themselves and go to the doctor. On top of that, he was raised to avoid the doctor. It is also hard when you are pretty sure it is just going to be a lot of cost with little to no answers. It’s so frustrating when I talk him into going to the doctor, only to be told they can’t find anything and leave him without any real direction.
Well, he’s now in his late 40’s and over due for his first colonoscopy. He was told, years ago, that he should start having colonoscopies in his mid 40’s because of a family history of colon cancer. So, he finally had it done.
Afterwards, the doctor told him his initial finding suggests that my husband has early Crohn’s disease. We are now waiting to have that diagnosis confirmed from the biopsies that were done.
I believe that him being gluten free for so many years has slowed down the progression of this disease, but I think he has had it for a very long time! (Thank goodness for gluten free!!!)
Waiting for confirmation of Crohn’s
So, my husband knows me well! He knows that I like to search things out and really do my research. The first thing he said to me is that he didn’t want to know or hear anything I was learning. He didn’t want to worry about it until he had an “official” diagnosis.
This was so frustrating to me! I not only researched Crohn’s but also the other disease the doctor thought it could be, Ulcerative Colitis. After doing some research I’m pretty sure Crohn’s is going to be the official and can see why the doctor said it was Crohn’s. At first, hubby didn’t want to hear that.
In some ways, I really think colitis is worse than Crohn’s. Though there seem to be some scarier things about Crohn’s.
Coming around
I’ve been a little frustrated not being able to share my research with my husband. I think he needs to know this information. Knowing this information will make it possible for him to be able to sit down and ask more questions to the doctor. Otherwise, it’s going to only be what the doctor can think of to tell him and then send him on his way. In my experience, it is more helpful to have some questions and a little understanding about what is going on.
Yesterday, he said he would like to know more. He wants to be able to ask the doctor questions about this disease. I think this is part of him coming out of denial. He said he was really hoping that they didn’t find anything and everything he was going through was actually normal.
Overwhelmed
I am feeling overwhelmed by all of it! There is so much to learn and know. Some of it is confusing and the dietary recommendations aren’t as cut and dry as they are for celiac!
With celiac, you go gluten free including no oats. Not even certified gluten free oats for the first year. Read more about oats and the reasons for this here and here. Then, if you continue to struggle with symptoms you play with your diet a little more, next cutting out dairy.
However, it looks like a lot of trial and error with loose guidelines for Crohn’s patients and their diet. There is so much information about the diet and disease, I almost feel lost and don’t know where to begin.
Hoping there is a support group that is local that we can attend and talk to others. While online is helpful, I have seen how much a support group to attend is and meeting those dealing with the same things and who have been where you are. Things come up while talking one on one. (I run a support group for celiac and gluten intolerance.)
Eat butter bib lettuce-an easier lettuce to digest (We had some last night and it is a softer lettuce.)
Limit dairy
Cook fruits and veggies to cut fiber down- remove Corn, beans, and stringy vegetables like raw seeds, fibers, skin, celery and broccoli aren’t easily digested; in Crohn’s they can cause cramping, bloating, and diarrhea. (It’s too bad, we love corn and beans!!!)
Cut veggies into smaller pieces (onions are more tolerable if cut into small pieces)
Drink more water
No potato skin
Seeds and nuts may be a problem
More electrolytes: salty snacks- chips, pretzels, crackers, rice cakes,
To get more potassium, eat potatoes (without skin), bananas, tomato juice or sauce, avocados, melon, or citrus fruits like grapefruit or orange (with the membrane removed). Coconut water is also a good source of potassium, and a good way to stay hydrated.
Smaller red meat portions (He loves his steak!)
Eat Fish (Ugh! Neither one of us are big fish eaters. Made some last night on the barbecue grill, a little different than the recipe but I used the sauce and kept brushing it on the salmon. It was good, as far as fish goes.) https://cafedelites.com/2016/06/26/honey-garlic-butter-salmon-foil/
A new diagnosis always comes with a learning curve, it takes time to learn and understand.
It won’t be long before it is just a part of our life.
This one needs some medical professional help. (Whereas celiac doesn’t need medication/prescriptions, and can be controlled, for the most part, through diet.)
Support groups are awesome!
We will get the hang of this, too.
Update:
July 11: At my husband’s follow up appointment, he was told there wasn’t scar tissue in his intestines and so they don’t think he has Crohn’s after all. They ordered another test for him and put him on some incredibly expensive medication that our health share (and most insurances) don’t cover! Thankfully they gave him some samples so we can see if this is going to help or not.
This seems to be the story of our lives! Thinking we have an answer and then finding out we still aren’t there!
New Update:
August 10: Nothing conclusive! The doctor once again said he believes my husband is non-celiac gluten intolerant and that perhaps this is what has kept him from having the Crohn’s damage. All his symptoms suggest Crohn’s disease, but the tests aren’t coming out the way one would expect with Crohn’s (Evidently, his body hasn’t read the book on how you are supposed to be when you have a certain disease. This is something I often say about my body and how it reacts to things.)
The doctor suggested that maybe he has Crohn’s light. Okay. . . not a concrete, actual diagnosis but there is only one more test he knows of doing. Next time hubby has pain the doctor wants him to come in and swallow a pill camera so they can get pictures of what is going on!
He has inflammation and ileitis and other than that it is a question. He will continue with his food journal to try and pinpoint what foods irritate him.
Sorry for the ugly pictures of the burn on my finger!
How I burned my finger
So, yesterday my daughter and I went on a morning bike ride. When we returned home, I thought it would be nice to cook the ham steak that was in the fridge and put some protein in after our work out.
I used a fork to turn the ham over in the pan and leaned it against the pan. When it was done, I put it on a plate and somehow ended up with the fork in the same hand as the plate. The fork was under the plate and so I wouldn’t be able to set the plate down without touching the fork to the table. So, without thinking I reached with my left hand and grabbed the fork right in the place that had been leaning against the pan!
Ouch!!!
Cold water and ice
I quickly set everything down and ran and put my hand in cold water. Then, I got an ice pack and wrapped it in a thin dishcloth and kept it on my finger for 20 minutes. It was looking really good and didn’t look like it was going to blister. You could hardly see anything, but it was hurting and stinging.
Essential Oils
Then I put helicrysum and tea tree oil. (I just did these topically without a carrier.) About 10- 15 min later it was still feeling like it was burning and stinging, so I iced again for 20 min. Added more oils helicrysum and tea tree oil to the affected area.
My daughter came over and told me to put True Lavender on it and that helped a lot. I continued to ice off and on. I then decided it was doing better and tried to wash a few dishes. It didn’t look like it was going to blister at all!
I shouldn’t have tried to wash the dishes!
However, the with the warm water, out popped this lovely blister!!! I put more tea tree oil and lavender on it and some aloe vera gel and was off to do some errands. The blister looked like it was getting bigger and I couldn’t wait until I could ice and apply more oils!
When I got back the blister was enormous!
I can’t believe that you can hardly see it after icing again!
After icing for 20 minutes, the blister went all the way down. It was amazing! I then applied more lavender oil.
I’ve done this before
While doing my errands I talked to my neighbor, whom I had made an essential oil- burn mixture. She got a burn while camping, last month. I had completely forgotten about that! She recommended that I do the same for myself. (Hello! I wasn’t thinking very clearly, evidently.) She said it had worked well for her, didn’t ever hurt and no scarring.
So, one more time icing for 20 min. and then I applied my Essential Oil Cooling mixture for burns.
It keeps going up and then down again.
This is how it looked this morning:
Can hardly see it at all! However, as the day went on it raised again. It is barely noticeable and hasn’t gotten as big as the first two pictures and hasn’t turned yellow.
Time Line
I burned my finger on June 28th- all of these pictures are from the 28th-29th of June. I meant to take more pictures but there wasn’t a whole lot to see. It remained sore for a while and sometimes a little red. However, before July 18th (when this picture was taken) it was completely healed. I just forgot to take a picture but wanted to show you how well it healed!
No sign of my awful burn!
Essential Oil Cooling Mixture for burns
.5 ounce spray bottle
True Lavender 8 drops
Peppermint 8 drops
Roman Chamomile 6 drops
Helichrysum 5 drops
Tea Tree 7 drops
Aloe and Coconut
Directions
Fill your .5 ounce spray bottle with the aloe coconut oil (This is your carrier oil.), leaving room to add the essential oils. Add the drops of each essential oil. Screw on the cap. I like to shake it up and then apply. I have applied it several times throughout the day and will continue until it is fully healed.
My first year as a college student I made: French toast, cereal, Ramen, and burned Hamburger Helper. I didn’t have a lot of cooking experiences and wasn’t very interested in making much. I was not gluten free and I was misdiagnosed and undiagnosed at the time and frequently sick. You can read more about my health story here.
My second year of college I decided to do a little more cooking and experimenting, but just a little. I think I made spaghetti and came up with this yummy recipe for Ramen! I tried a few other combinations with other ingredients; ewww totally not worth mentioning!
Directions for Gluten Free Mexican Ramen
This post contains affiliate links. I include these links for your convenience to be able to find similar items to what I am using. I earn a small commission for the referral, but your price remains the same.
Noodles
I was so disappointed that Ramen has wheat in it! It was my favorite lunch and sometimes dinner! It took us a while to find a good substitute!
We use this Rice Ramen from Lotus Foods. We buy it at Costco, but it can also be found on Amazon. (It’s gluten free and vegan!)
It’s been so nice to have this back, especially for our college students! My daughter, also made this in college and it is one of her favorites! Her roommates thought she was crazy! She finally got them to try it and by the end of the year, they were all making it!
Boil the noodles according to the directions. Add a teaspoon of Better Than Bouillon for flavor. (I prefer the chicken flavor.)
Eggs
While the noodles are boiling in a sauce pan, scramble 2 or 3 eggs in a fry pan.
The rest of the ingredients
Crunch or broken tortilla chips into a bowl. (My favorite are Tostitos .) You will want a large cereal bowl for this!
Add scrambled eggs to the bowl.
Drain the noodles. . . you can leave a little bit of the liquid if you want. My daughter leaves all the liquid and still adds a lot of salsa to it. I prefer very little liquid, if any and lots of salsa! (Actually, I use picante sauce- Pace Picante Sauce.)
I put enough Pace Picante Sauce to make it moist. This is according to your liking- add more or use less. I don’t measure. I just add what I like and I like the picante sauce to be the moisture.
Add grated cheese (optional)
Mix together and enjoy!!!
Gluten Free Mexican Ramen
Shannon LeMmon
This recipe feeds one! Noodles with a Mexican twist!
It can be difficult and overwhelming to go gluten free. The first thing you need to figure out is what is gluten free and what is not. What grains can you eat? It seems like it should be cut and dry, but it can be complicated especially when there is so much contradicting information.
Get Tested Before Going Gluten Free
Hopefully you have been tested for celiac before going gluten free. Even if you are positive you don’t have celiac, it is still a good idea to be tested first! The main reason for this is that it is next to impossible to get an accurate test after going gluten free. Also, once you begin to feel good, you won’t want to go back on gluten!
Next to no symptoms, but positive for celiac
I knew someone who was tested because his sister was newly diagnosed. Her symptoms were pretty severe. He was sure it would come back negative because he didn’t have any of her symptoms. In fact, the only health complaint he had was some shoulder pain. The whole family was surprised when his test came back positive for celiac. Another brother refused to be tested at that time. However, when he began having shoulder pain similar to his brother, he was tested and also positive for celiac.
Who else should be tested
All family members with a 1st degree relative that has been diagnosed with celiac should be tested for celiac regardless of symptoms. A first degree relative is parents and siblings of someone diagnosed with celiac.
A negative result doesn’t mean you are free and clear. It may mean that it isn’t active at this time. Also, I have met many people who have had negative blood work but positive biopsies. The gold standard for diagnosing is the biopsy. (It’s important for doctors to take several biopsies so they don’t miss the damaged part of the intestine, since the damage occurs in patches.) The blood work is a good starting place.
What is gluten
Gluten is the protein found in wheat, rye and barley. This also includes any derivative of these grains.
Wheat
kamut
durum
spelt
emmer
farina
farro
einkorn
Triticum
Rye
triticale- which is a cross-bred of both rye and wheat
Barley
malt- (Most malt made in the U.S. is derived from barley.)
Non-certified & purity protocol Oats
Oats do not contain the same gluten protein that wheat, barley and rye contain. However, because of how they are grown and processed, cross-contamination makes them unsafe to consume if you have celiac, gluten intolerance or a wheat allergy; unless they follow a purity oats protocol.
There is a difference between certified gluten free oats and those that follow a purity protocol for oats. The one you want is the one that follows the purity protocol. You can find more information about the purity protocol and brands at the Gluten Free Watchdog, LLC. Also, GF Jules has written a lot about gluten free oats.
Not all people with celiac can tolerate oats because the protein in oats is close to the protein in the gluten containing grains. (Personally, it isn’t worth the risk to me and I prefer to also avoid oats.) That being said, research says that most people with celiac can tolerate pure oats.
Oats in body products: shampoo, soap, lotion, sunscreen, etc. often make people who need to be gluten free, react topically. I have never seen certified gluten free oats used in these products. (I have first hand experience with this and it can take 4-6 months for a reaction to calm down. The only medication that helped me was steroids. Eliminating the body products containing oats and other gluten ingredients has kept me from having another reaction.)
Other gluten ingredients to watch out for:
Brewer’s yeast
Malt
Brown Rice Syrup
Soy Sauce Solids
Self-Basting Poultry
Hydrolyzed Vegetable Protein/HVP
Malt Protein
Dextrin
Hydrolyzed Plant Protein/HPP
Malt Flavoring
Chicken or Beef Broth
Vegetable Protein
Malt Vinegar
Soy Sauce
Chicken or Beef Soup Base
Just having gluten free ingredients isn’t enough
You can use the best gluten free ingredients and it still might not be gluten free because of cross contact (sometimes called cross contamination)! Cross contact is when gluten comes in contact with gluten free ingredients or products, thus contaminating the product!
This can happen by:
touching gluten and then touching gluten free item
placing gf item where gluten has been (i.e. counter)
using the same knife to cut gluten foods and then cutting gf foods
frying gluten and gluten free foods in the same oil
using the same jar of peanut butter, jam, butter, etc. for gluten and gluten free (A knife that has touched gluten and then been put back into the jar a second time has contaminated the entire jar with gluten. Use separate jars, butter, etc. for gf and gluten!)
What grains are gluten free
I was amazed, as most people are, with how many gluten free grains and flours there actually are! We have grown up thinking that wheat flour and bleached wheat flour is all there is. I was so surprised to learn that is simply not the case!
Pretty much anything that can be ground up, can be made into flour! There are so many grains available that don’t contain the gluten protein:
Rice
Corn
Millet
Arrowroot
Chia
Soy
Potato
Buckwheat
Amaranth
Yucca
Tapioca
Beans
Cassava
Teff
Nut flours
Sorghum
Quinoa
Coconut
Flax
Oats- (certified gluten free)
There is a whole world of gluten free flours to explore, try, and experiment with!
Resources
My favorite resource is the Gluten Intolerance Group. They have great information sheets that you can print out and have handy.
*Views expressed here are my opinion. You should always do your own research and get advice from qualified medical professionals.
This post contains affiliate links. I include these links for your convenience to be able to find similar items to what I am using. I earn a small commission for the referral, but your price remains the same.
This was a favorite dessert before we went gluten free. One of our goals was to figure out how to get this delicious dessert in a gluten free version! We discovered that Sun Flour Mills Pumpkin cake mix was perfect to exchange the pumpkin that you add to the mix with applesauce!
It worked out so well! This year my daughter asked for GF Applesauce Spice Cake for her birthday cake. Cream cheese frosting pairs perfectly with the applesauce spice flavors! We got so excited to eat the cake, I almost missed getting pictures of it before it was gone!
Ingredients for Gluten Free Applesauce Spice Cake
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It’s important to check, every year, what the gluten free sunscreens are because companies change their ingredients and formulas. Sunscreen should be the least of your worries when playing in the sun!
Some ingredients to be aware of:
Wheat, hydrolyzed wheat protein, wheat germ (vitamin E derived from wheat germ oil), oats and other gluten ingredients (because it isn’t a food product wheat and other gluten ingredients can be called by other names).
If you have other allergies also watch for those ingredients: milk, tree nut (sweet almond oil, ginkgo bilboa, and argan oil) , peanut (arachidyl glucoside and arachidyl alcohol), and soy to name a few. (Sunscreens listed may contain these ingredients.)
Some people react to Titanium Dioxide (Some of the sunscreens listed contain this ingredient)
Oxybenzone
Octinoxate
Homosalate
Wheat and oat ingredients
Wheat and oat Ingredients– If you are gluten free you naturally want to make sure your sunscreen is gluten free. The most common gluten ingredients in body products are wheat and oats. Here are some top reasons for not having wheat, oats or other chemicals in your sunscreen:
If it is in spray form, it can be inhaled and get into your system.
When you sweat it can get into your mouth when it rolls down your face.
If it gets on your lips, you can ingest it.
Many people react to gluten topically.
Some ingredients do absorb into your skin.
Why you should worry about these other ingredients
Celiac and thyroid disease often go together. Therefore, anything that can effect the thyroid, you should be aware of, so you can protect your thyroid health. Learn more about endocrine disruptors.
“Laboratory studies indicate that some chemical UV filters may mimic hormones, and physicians report sunscreen-related skin allergies, which raises important questions about unintended human health consequences from frequent sunscreen application.” (http://www.ewg.org/sunscreen/report/the-trouble-with-sunscreen-chemicals/) This is especially worrisome with thyroid issues. Not much testing has been done on the safety of many of the chemical ingredients that may disrupt hormones used in sunscreen, lotions and cosmetics.
Oxybenzone
Oxybenzone is a chemical often put in sunscreen and cosmetics. Oxybenzone is known to cause allergic skin reactions. “In laboratory studies it is a weak estrogen and has potent anti-androgenic effects.” (http://www.ewg.org/sunscreen/report/the-trouble-with-sunscreen-chemicals/) It acts like estrogen, in the body, disrupting natural hormone levels.
Some research has shown that teen boys have a lower testosterone level when they have high levels of oxybenzone in their systems. The chemical has also been detected in breast milk, may contribute to endometriosis, and poor sperm quality in men.
Octinoxate (Octylmethoxycinnamate)
Octinoxate (Octylmethoxycinnamate) Another hormone disrupter to watch out for. It disrupts the hormones as it mimics estrogen and can disrupt the function of the thyroid. (http://www.safecosmetics.org/get-the-facts/chemicals-of-concern/octinoxate/) Studies show it can also affect the reproductive system and may be linked to breast cancer. (http://www.thedermreview.com/octinoxate/)Not only is this chemical found in sunscreen but also in hair color products, lip stick, shampoo, lotion, nail polish and skin cream.
In sunscreens, this chemical is used for UV ray filtering and absorbs quickly into the skin. This chemical has been found in breast milk, urine, and blood of those who regularly use sunscreen.
More names octinoxate may be listed as on the label:
PABA is short for Para-AminoBenzoic Acid aka vitamin Bx. Some consider this a complex B vitamin, but it is actually an amino acid, not a vitamin. This chemical is used for blocking UVU Rays, but can be harmful to your skins health. Ingested it can be harmful to the liver (8 grams or more ingested). It can also lead to skin abnormalities including melanoma as well as, some have allergic reactions to this ingredient.
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*This is not a complete list. Always double check ingredients. Ingredients sometimes change.
Gluten Free and Hormone Disrupter Free Sunscreens
Not listed in any particular order!
Many of these brands carry other sunscreens that may contain wheat, gluten, or hormone disrupters. Be careful of the ones you choose. You can check out the hormone disrupters at this website, but may still need to check ingredients or contact companies about the gluten. http://www.ewg.org/sunscreen/best-sunscreens/best-beach-sport-sunscreens/Most mineral sunscreens won’t have hormone disrupters.
1. Honest Company Mineral Sunscreen
Used this last summer and loved it! Went to Zion’s National Park and didn’t get sunburned at all!
2. Blue Lizard Australian Sunscreen
3. Goddess Garden
In a chat with Goddess Garden Organics, I was told all of their products are gluten free!
4. True Naturals
All their products are gluten free, according to the ingredient statement on their page.
5. Waxhead Sun Defense
6. All Good
7. California Baby
From their website: “California Baby products are free of common allergens such as gluten, milk/casein, egg, peanut, walnut, cashew, almond and pecans, fish, shellfish, soy, and wheat.”
8. Kabana Organic Skincare
*This one is also soy free!
9. Thinksport
One of the ingredients is Pine Wood Resin. Interestingly, this ingredient is used in many cosmetics. It isn’t harmful but some people may react to it. I for one won’t be using it. My dad is a carpenter and I used to work for him until I developed a horrible reaction to pine saw dust.
In a Pinch
If I couldn’t find one of the sunscreens on the list I would use Coppertone Sport. We have used it for several years. She won’t get a rash from it, but I would worry like crazy about the other ingredients in it that are hormone disrupters. I don’t plan on being in a pinch!
Coppertone Sport
I am so disappointed to learn about the ingredients in this sunscreen. I have been using this sunscreen on my daughter since she was very little. She was diagnosed with her thyroid diseaseright before her 11th birthday!
No gluten, but. . .
Contains all of these hormone disrupters:
Avobenzone- part of the Octinoxate family
Homosalate
Octisalate
Octocrylene
Have you tried any of the sunscreens on this list? What did or didn’t you like about them? What is your favorite gluten free/hormone disrupter free sunscreen?
Gluten Free Cream Cheese Chicken was my daughter’s request for her birthday dinner! Everyone was so happy, because everyone likes it! That is sometimes a big order in our family. I have one daughter who doesn’t like a lot of foods and is sensitive to others. I like it because it is so easy and is made in the crockpot.
This is one of the best finds in a church recipe book and I was able to tweek it to be gluten free!
Boneless, skinless thighs taste best in this recipe!
Ingredients for Gluten Free Cream Cheese Chicken made in the crockpot
2 lbs boneless, skinless thighs
1 stick butter (1/2 cup), melted
1 tsp salt
1 1/2 tsp parsley
1 1/2 tsp oregano
1 tsp garlic powder
1 tsp onion powder
1/2 tsp basil
1/4 tsp thyme
2 Cups Gluten Free Cream of Chicken Soup(Double the GF Cream of Chicken Soup recipe, that is at the link, so you have 2 cups of the soup.)
8 ounces cream cheese
Directions:
Turn your crockpot on low. It will need to cook for 4 hours.
Put melted butter into crockpot.
In a small bowl mix together all of the spices.
Put mixed spices into butter and stir.
Add boneless, skinless chicken to the butter and spices and mix it together until well coated.
Cook on low for 4 hours.
Before serving make the sauce for the chicken.
Follow the directions for Gluten free Cream of Chicken Soup. (Because my family loves to use the sauce as gravy on mashed potatoes and we never seem to have quite enough, I double the sauce and do 4 cups of the soup with 16 ounces of cream cheese. I would try it with the 2 cups the first time and see how much your family eats, before doubling it.)
Once soup thickens, add the cream cheese. Break cheese into small pieces when adding it to the soup. This will help it to melt quicker.
Serve with Mashed potatoes, green beans, corn or mixed vegetables.
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Gluten Free Cream Cheese Chicken- Crockpot
Shannon LeMmon
Delicious combination with the dark meat from the chicken thighs and the creaminess of the cream cheese sauce. The cheese sauce perfectly compliments the chicken and goes great with mashed potatoes!
Camp snacks are a necessity for any camp experience whether it be girls camp, youth conference, boy scout, young men’s camp, Father and Sons, 4-H, or any other camp. If you are the camp leader always check with the kids and their parents about snacks. The people who will be involved will be able to give you ideas for things that work for them.
If you are the parent sending your kids off to camp; this list is a great place to start.
*Always read ingredients and double check that they do not contain: wheat, rye, barley, oats (unless certified and only if you are used to eating oats), malt, and barley malt. Sometimes things will be labeled gluten free when they really aren’t; this is why it is important to double check labels and ask those that live gluten free what they can tolerate. Not everyone that is gluten free can tolerate the same things nor do they have the same likes (just like anyone else). Also, not all gluten free products taste good; they are more expensive and you don’t want to waste money on something the parent and camper know their kids won’t eat.
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Gluten Free S’mores Kinnikinnick S’moreable Graham Cracker***Have a separate gluten free bag of marshmallows. Other campers touching regular graham crackers and then reaching into the marshmallow bag; they touch the other marshmallows and the bag. My daughter got sick from this happening. (Same thing can happen with chips and buns, especially when the buns are before the chips in the food line.)
Please leave your favorite gluten free camp snacks in the comments.
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“GF” or “gf” are common abbreviations for gluten free.
Breakfast often included some fruit and/or yogurt. Most lunches and dinners had a green salad served with the meal. Usually a vegetable with dinner. This isn’t super detailed because parts of the meal that I didn’t have to worry about because they were already gf were given to me at camp when the food was chopped or ready to cook. Most my notes were for what I needed to specifically be aware of for each meal and for whom.
Thursday Dinner
(1st day on trek, each kid brought their own sack lunch for Thursday lunch.)
Taco Salad
To be safe we decided I would make the taco meat for the gluten free kids. No need to worry about nuts for this meal.
Watch cheese and sour cream- Zach (3), Shandra (4), and Isabel (5)
All lettuce, tomatoes, onions, sour cream, etc. should be put out separately in the allergy line. Dairy free sour cream (possibly).
Strawberry shortcake- James (8), Janessa (8), Shannon (8), Zach (3), Shandra (4), and Isabel (5)
Friday Breakfast
Breakfast burritos
We made the eggs separately for the allergy line and cooked our own meats for the breakfast burritos. It would have been easier if we would have had something bigger than a small Coleman Stove or if we were able to share a large stove with the group and done it in the pans we brought.
Dietary issues to watch and substitute or omit
No cheese [Zach (3), Shandra (4), and Isabel (5)]
GF Tortillas- White corn shells are a little smaller than the flour ones, but they are gluten free [Janessa, Shannon, James and Maddie (3)]
No biscuits or gravy [Janessa, Shannon, James and Maddie (3)]
Sausage & ham – [Brandon (14)]
Friday Lunch
BBQ Chicken Sandwiches
Sometimes it is easiest and still safe to cook the meat all together and then set the needed meat aside. There was nothing to worry about for the dairy and nut free kids. The reason the meat is separated to set aside for the gluten free people is because people especially youth are NOT careful with crumbs and serving utensils often touch their bread and then that spoon goes back into the meat. (We double checked all ingredients in the BBQ to make sure it was gluten free!)
GF Buns [Janessa, Shannon, James and Maddie (3)]
Gf cookies
Friday Dinner
Steak
No baked beans Dakota (5)
Italian dressing [Zach (3), Shandra (4), and Isabel (5)]
GF rolls
Gf brownies
Saturday Breakfast
Pancakes and eggs
Gf/soy free pancakes [Janessa, Shannon, James and Maddie (3), Isabel (5)]
No peanut butter (Jake, Savanah, Brady (3), and Jace (14))
Gf bread
Gf jam
Saturday Lunch
Cold cuts/ Philly Beef Sandwiches
Gf bread & gf condiments
No Cheese [Zach (3), Alashandra (4), and Isabel (5)]
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SNACKS
Gluten Free Pretzels (Soy, no nuts, no milk) (I made a note that they did contain soy because we had a camper who couldn’t have soy)
GF Trio Bars (NUTS, no soy, no milk)
GF Rice Krispie Treats (No nuts, soy or milk)
GF Angel Food cake (no lactose, no soy [may contain soy], not nuts)
*Remember that all ingredients should be checked to make sure they are free of the ingredients your Trekkers are sensitive to. (Gluten Free ingredients to look for: wheat, rye, barley, oats (please refer to my other post that discusses why oats is on this list), malt, barley malt, spelt, kamut, triticale, graham, and malt vinegar.)
I hope this sample trek menu helps you with ideas on how to organize and substitutions to make when you have to worry about someone going on LDS Trek.
Why having a cook responsible for dietary issues on trek is a good idea
It would be ideal to have a larger stove especially if you have very many people. This small camp stove was a challenge at times.
Whether your stake is big or small, the food is always a big deal and can be a huge challenge to make sure everyone is fed and healthy, especially on trek. When dietary restrictions like gluten free are added to the mix and it can be complicated. Then, you also have other allergies and dietary issues to work with and the complications can multiply.
Having a person over that smoothes out many of those issues, making it easier for leaders to focus on the larger group without worrying that the group with dietary issues will fall through the cracks. It also helps the youth and leaders going, with these dietary issues more peace of mind knowing they don’t have to worry as much about the food and what they are going to eat and how high the risk is of having a reaction.
It is stressful to send your kid to camp especially when dietary restrictions are involved. It would be much easier to keep your kids home, but we don’t want to do that! We want our kids to have the same experiences with their friends, ward members and stake. Food shouldn’t hold them back. They don’t want to be put on the spot or made to feel weird and someone who knows how to handle these issues is helpful to have on your trek leadership team.
Our Trek Experience
My husband and I were assigned to do food on Trek for all of the people who have allergies and any other dietary restrictions. I know how to do gluten free foods really well, but needed to brush up on dairy free and some of the allergies of the other trekkers.
I had my coolers and a separate camp stove, cookware and utensils. The allergy/dietary restricted trekkers were sent to me every meal and we had a line set up just for them. This really is an ideal way of doing it. Always set aside all food and condiments needed for each meal in an allergy friendly line. Less mistakes and problems happen when done this way.
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Before Trek
Menu
If possible, your dietary cook should be part of the meal planning or at least be given all the details. This not only includes the menu, but how it is all going to work at meal times. (Setting up, traveling, every meal that needs heat and tables. Details about the menu and condiments. If the allergy line has condiments and the other line doesn’t, kids will sneak over to use and get what they want.) Our wards ate in shifts and it was helpful to know what ward was eating when, so I knew who to keep an eye out for and what they needed .
Having meal information in a timely manner helps your dietary cooks to be able to plan ahead, know what to talk to parents and leaders about and start making plans and gathering info for substitutions.
Snacks and Treats
How are snacks and treats being handled? Our stake was giving out snacks and treats along the trail and at the beginning of each day. Knowing what those items were helped me to plan for what the kids needed. Granola bars don’t cut it when you are gluten free or nut free.
Also, are there any other food things they plan on doing with a game or special visitor. These things often get overlooked. It isn’t unusual for gluten free kids to get overlooked and this contributes to feelings of isolation, not being included, temptation to cheat (even though they know it will make them sick) and feeling like they are different in a very negative way.
I had an itinerary that had the events of the day and a list of the snacks that would be given. The boy allergic to nuts thought he would be going without. He obviously couldn’t have the granola bar. I made him a special snack baggie that contained gluten free, dairy free, and no nuts pretzels. As well as, a gluten free Rice Crispy Treat. He was so surprised! He didn’t need anything but nut free, but gluten free worked so well for all of these kids!
Organization
Substitutions
Once I knew who each person with a dietary restriction was, I made a spread sheet grouping issues and allergies together, as much as possible.
I then went through the menu and made notes of any problems I could see, brain storm my ideas for substitutions and write down anything I should specifically ask about. I was then ready to call people and ask specific questions about their diet and for their suggestions on substitutions. Especially if it is a restriction I don’t have; I don’t know what really works as a substitution, what tastes good or what other options might be available. Even if I know a lot about it I still ask if the plan will work for their child or them if they are the leader participating.
Easy to follow meal and snack plan
Having a sheet of paper that had exactly what and when each meal was, what the item/s of concern were, name and ward helped me to stay organized on the trek, while we were moving each day!
Example:
Thursday Dinner
Taco Salad
Watch cheese- Zach Smith (3), Marnie Ryder (4), and Michelle Jones (5)
So, I have the meal and when it is happening, the food that will be served and what needs to be handled and for whom. The number is the ward the person is in. It may also be helpful to note whether the person is a youth or a leader.
Frequently during the day, I would find the kids on my list or leaders and let them know what I had set aside for them. Or like in the case with the taco salad what things to avoid. The dairy free kids only had to avoid the obvious with cheese and sour cream, but I still mentioned it to them. The dairy free kids weren’t used to having someone looking out for them. If they just had to avoid cheese and sour cream they would just go to the regular line; either one worked for them and that was fine.
For snacks I often had to find them because it was next to impossible once they started to trek.
Gathering Information
Everyone going on Trek was supposed to put on their forms any allergies and dietary restrictions. The stake gave me a list of all of the participants with restrictions. I called each parent or leader and asked more questions about their diet. (*Don’t forget about the leaders who have restrictions, including any priesthood leadership who will be attending.) Talking to those with dietary restrictions is an important step anytime you are dealing with anyone’s dietary restrictions.
For example, some people with milk allergies are okay with milk being in foods but not straight dairy, like on cereal or ice cream. Some, with nut allergies are fine if it is in camp and others will go into anaphylaxis if it is on someone’s breath or if they come in contact with a surface touched by someone who touched a nut.
Checking Information
I went through each day with the parent or leader who would be attending trek. As we went through each menu item I would talk about substitutions and ask if that would work or if they had any suggestions.
I let the gluten free parents know that I understood cross contact and how to keep their kids from getting sick. I asked them if they had any questions or concerns about the food.
*Oats and things like Cheerios aren’t eaten by all people with celiac. Cheerios is NOT recommended for anyone who has to be gluten free for medical reasons. (At least, not at this time.) Not all people with celiac can tolerate oats and if they aren’t eating them, they have to be added very slowly back to the diet in order to watch for any issues. 1/4 a cup a week is the recommended amount for oats being added to the diet and slowly increasing to 1 cup a week.
On Trek
Food Prep
Some of the food planned is alright to be prepared together, but for those who are gluten free, everything should always be pulled out and set aside, before people come to eat. Have a stove dedicated to keeping the gf food warm.
For Example:
One day we had BBQ Chicken Sandwiches. I checked the recipe and everything was gluten free except for the bread. After watching a few people come through the line, we pulled food aside that was still on the stove, because there were crumbs everywhere and it was not gluten free safe! This is why I say to always have an allergy line.
The reason why is because people, especially youth are not very careful and don’t think about or worry about cross contact. (Cross contact is when someone or something touches gluten and then touches surfaces and or gluten free items. The cross contact has now contaminated the gluten free product and it is no longer safe for someone who has celiac or is gluten intolerant.)
For example: when a serving spoon, goes from one dish to the next or touches your gluten bun and then is put back in the food the protein in the gluten is transferred to the surface or the formerly gluten free item. Hands do this too. Touching gluten and then touching gluten free is cross contact and now there is gluten on the gluten free item or in the case of the serving spoon in the gf dish.
Squeeze containers are wonderful and you don’t have to worry about knives and cross contact with the condiments. It is still a good idea to have separate condiments in a gluten free cooler that is only used in the allergy line. *Always have some condiments set aside.
*My daughter got sick because people were touching graham crackers and then reaching into the marshmallows. Have a separate bag for those who are gluten free.
Food helpers
Make sure all helpers with the food know that it is set up the way it is for a reason. It is hard in the heat of the moment (when it is busy and chaotic) when someone asks if they can move something or do things differently.
For Example: I have celiac and when there is a lot of chaos I can’t always think clearly. (Possible side effect of the disease being undiagnosed for so many years!) I had a well meaning person ask if they could add the cheese to the salad to speed things up. I am not used to watching out for dairy because it isn’t one of our issues and this made it hard for the dairy free people. Have a standing rule that it is organized the way it is for specific reasons and don’t let people come in and “make it better”!
Summary
Have a menu and list of all restrictions, who and what ward
Call parent/leader for more info about the restriction
Ask for dietary restrictions of ALL kids, leaders and priesthood members who will be attending camp, anytime during your adventure. (Priesthood leaders frequently get missed and sometimes leaders.)
Ask ideas for substitutions and parents and/or individual know what substitutions are planned. Ask if that works for them.
Introduce yourself to the parents, leaders and kids; especially those who need to find you in the allergy line.
Let them know what is available at each meal and dessert. Some allergy kids aren’t used to having something substituted. Most allergies aren’t like gluten, which needs more planning and substitutes because it is in so many things.
Remember to plan for treats, snacks and desserts.
Find a way to organize things, that works for you. What you need for each meal, who, ward, etc. When things happen- like snacks and treats. What night there is dessert and what substitutions you have for each meal.
Separate Allergy Line with separate condiments.
Don’t let people change the way it is set up. It is probably set up that way for a reason- changing it in the spur of the moment may make it so someone can’t have dinner.
The biggest things to do with gluten free and dietary restrictions on trek is to plan and communicate with those who have the issues; leading up to the event.
It was so much fun to see my daughter on Trek and know that she was being fed in a way that she was less likely to get sick or have a problem.
It might not be perfect and mistakes sometimes happen, but we appreciate those who put forth effort to make it a good experience.
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